Wednesday, September 28, 2011
Hope For A Cure
Friday, September 2, 2011
Broken/Spreading Awareness
This month is CHILDHOOD CANCER AWARENESS month...Please join us. If we can all come together we can make a difference. So please join us...Help these beautiful babies!! TURN FACEBOOK YELLOW THIS MONTH =) Thank you!!
Source: The American Brain Tumor Association
Source: Treatment of newly diagnosed diffuse brain stem gliomas in children - David N. Korones.
Source: St Jude Childrens Research Hospital
Source: The Cure Starts Now
Wednesday, August 17, 2011
Dylan's Celebration Info
Dylan’s faith in the Lord grew strong in the last few years. He enjoyed attending Awana and looked forward to church on Sundays. Soon after Dylan’s brain tumor (DIPG) was diagnosed, Dylan and his family went to stay at the Ronald McDonald house in Palo Alto. Dylan knew he had a life-threatening condition, but instead of feeling sorry for himself, his kind heart and strong faith led him in another direction. One day, Dylan looked up at his dad and asked, “Do you think the other children here know Jesus?” Josh replied, “I don’t know, Buddy. Why do you want to know?” Dylan answered earnestly, “Because I want to pray with them.” And they did pray with several families that day, all because a selfless 10-year-old boy wanted to bring peace to other sick children.
During his stay at the Ronald McDonald House, Dylan compiled a “Bucket List” of things he would really like to do. Among them was going to an Oakland A’s game, getting baptized at Jones Beach, and experiencing LEGOLAND. Not only did he cross everything off of his list, he also received a beautiful gift from his favorite singer, Kim Walker. She came to visit Dylan and sing for his family. Dylan never lost his wonderful sense of humor, either. Jenn was outside one night trying to collect her thoughts when she was charged by a territorial raccoon. She quickly aimed a rock and hit him in the head. Instead of frightening him away, he chased her back to the building! A few weeks later, after the family returned from their trip to LEGOLAND, Dylan was ready. As they got out of the car, Dylan started smiling and called out, “Raccoon … my mom is here,” then he turned to Jenn and asked, “Are you scared, mom?”
A few weeks ago, Dylan hosted a community party at Greenhorn Park to thank all of the wonderful people who worked so tirelessly, donated generously and prayed for his recovery. He had a great time that day and was able to make some wonderful memories.
Dylan is survived by his parents Josh and Jenn Frick; his sister Lyndi; his paternal grandparents Scott and Tammy Frick; his maternal grandparents, Rosalinda Sendejo, Sonia Cantrell, Paul Yingst and Dwight Fugler; and his aunts and uncles, Luis and Jessie Valladares, Will Fugler, Julie, Jessica, Selena and Bianca Sendejo.
In lieu of flowers, please make monetary donations for LEGO sets or donate actual LEGO sets to Mountain Heating & Air, 211 E. Oberlin Rd., Yreka, CA 96097, or to the Frick Family, P.O. Box 121, Greenview, CA 96037. Each year, the Frick family will be traveling to the Lucille Packard Hospital on Dylan’s birthday to handout the donated LEGO sets and pray with the families living in the LPH house awaiting their treatment.
There will be a celebration of life party in Dylan’s honor at Lower Greenhorn Park this Saturday, Aug. 20, 2011 at 1 p.m. Per the family’s request, please wear bright-colored clothing, bring a folding chair and a main or side dish to share, and come celebrate what a remarkable young man he was.
“If we live in the Spirit, let us also walk in the Spirit.” – Galatians 5:25
Girdner Funeral Chapel is handling the services for Dylan.
Friday, August 12, 2011
An Unreal Friday
Thursday, August 11, 2011
So Very Broken
Afraid things have taken a things for the worst. The last three days have been very trying for us all. We as a family still try as hard as can be to laugh, share stories, and keep it as joyful as we can. We do not want either of our children to suffer anymore then they both already are. We are thankful the Lord gives us strength to love, and support them in the manner we have been able to. Do not get me wrong. I cry just in the night, and when I go outside. I pray and surrender again to Papa God. I feel a strength and way to find the joy throughout our days in these moments coming to Him.
Tuesday, August 9, 2011
Still Counting It All Joy
Friday, August 5, 2011
Spreading Awareness
Diffuse Intrinsic Pontine Glioma (DIPG)
Source: The American Brain Tumor Association
The median overall survival of children diagnosed with DIPG is approximately 9 months. The 1 and 2 year survival rates are approximately 30% and less than 10%, respectively. These statistics make it one of the most devastating pediatric malignancies.
Source: Treatment of newly diagnosed diffuse brain stem gliomas in children - David N. Korones.
The standard treatment for DIPG is 6 weeks of radiation which often dramatically improves symptoms. Unfortunately, problems usually recur after 6 to 9 months, and progress rapidly.
Source: St Jude Childrens Research Hospital
In their quest for a cure, DIPG children must move from one experimental protocol to another enduring treatments with many side-effects which would be unacceptable with any other diagnosis. The cruelty of this disease cannot be denied. Sparing their cognitive abilities, DIPG slowly robs children of their motor functions resulting in partial paralysis, loss of voice and sight and finally ending with an inability to eat and breathe. It is both heart wrenching and painful as they are fully aware of their decline often until their last day. The cure starts now...
Source: The Cure Starts Now
We currently DO NOT know what causes brain tumors. The major causes seem to be chromosomal and genetic abnormalities. Research so far has statistically proved very few instances of possible environmental causes for childhood cancer. The Children's Oncology Group (COG) continues to conduct epidemiology, cytogenetic, and microbiology studies in their quest for answers.
Funding for pediatric brain tumor research is critical since treatments discovered for adult brain tumors may not be appropriate for children. Pediatric cancer research has been important in understanding the basic biology of cancer, treating adults with cancer and providing principles of therapy and advances for other diseases of children and adults. For example, chemotherapy was first shown to be effective in curing children with cancer.
In recent years, the amount of funding for childhood cancer clinical research from the federal government has been declining. (we can change this!!!) We can make a difference. It breaks my heart that funding is very minimal for a monster that gives these kids a death sentence.
This is just the beginning. We as TEAM DYLAN FRICK will spread awareness and raise money for research. I can't express how thankful we are for each and everyone of you. Thank you again for you continued prayer, support, love, and financial support. It has blessed us with time that is priceless =) Thank you for being part of our journey.
Tuesday, August 2, 2011
Day After Day
Sunday, July 24, 2011
Home Sweet Home
Saturday, July 16, 2011
So Much To Share
Wednesday, July 6, 2011
LOVE
Sunday, July 3, 2011
Feeling Broken
Thursday, June 30, 2011
Precious Time
Monday, June 27, 2011
Thankful but Broken
Saturday, June 25, 2011
Laughter is The Best
Thursday, June 23, 2011
One Day At A Time Couldn't Explain It Better
Monday, June 20, 2011
The Hardest Choice of our Life
Sunday, June 19, 2011
Cherishing The Moments
Thursday, June 16, 2011
Thankful
We really have to make some hard desicions.... Praying the Lord gives us complete confidence in what we decide. I watch and pray for him all night long aching for this to be gone. I know however it is not in my time, and it is not my will but My Heavenly Father!!! His LOVE, GRACE, and MERCY are a comfort in this storm.
So today we get to Check into the ROnald McDonald house=) We are excited to stay there for Dylan. So many fun things and activites for him to do. He has a swallow test today. He is having some issues with swallowing=( Poor guy is also backed up really bad. He has been on Miralax for a couple days, has had two enemas in the last week, and still our babe can't use the restroom. So today we will be talking to Dr.Partap about that. I believe that is causing most of his tummy discomfort. Praying for this to be fixed today!!
Scott, Tammy, and Lyndi are coming to visit us today!!!!! For those of you who don't know Scott and Tammy are his grandma and grandpa Frick =) Lyndi is Dylan's little sister! She is 8, almost 9.lol Very important fact at 8 ;) We haven't seen our babe in over a week. As a parent I feel bad because I can't be in two places at one time. I know that isn't realistic. It's hard not to comfort her daily. She is having a blast with all of our family and friends!! Thank you to everyone who has played, loved, and supported our princess!!!!