Sunday, July 24, 2011

Home Sweet Home

It's been a little while since I have blogged, or even been online for anything other then legos.lol So this morning I am taking the time to catch you all up.
We are home =) We arrived here Sunday. I can't express enough thanks to Mama Frick and my sister in law =) They had balloons hanging and posters. Outside was a wheel chair ramp that was made special by a couple of our awesome friends. We were overwhelmed with love and compassion. SO THANK YOU!!
Everyday Dylan has wanted to go to Yreka to do something. Most of the time it involves a oreo chill from Golden Rush.lol He is so happy to be home. These are his stomping grounds ;) Wednesday he got Baptized at Jones Beach. It was beautiful. We had close friends and some family with us that day. It just happened to be the first SONny day since we have been home =) Thank you Jesus! This was also the day Dylan started oxygen. They didn't really want him to go get baptized because he was having problems that day. However, he said he had to be baptized. On the way there he mentioned he didn't want to lay back flat. He gets HORRIBLE headaches when he does. I said maybe the could pour water over him...he replied..no mom I need to be be completely dunked...BLESS HIS HEART...we found a way to make that happen=) Continue to learn from my babe everyday..
I just really want to thank EVERYONE in our community... The outpouring of love, and prayers have been incredible. We can't thank you all enough. We all want to thank you for the financial support. It has been an incredible blessing for us. There are no amount of words that could express our gratitude. We will be doing whatever makes Dylan, and our family comfortable during these times, and because of all of your support that is possible!! Thank you, Thank you, Thank you!
"Let us love one another, for love comes from God." 1 John 4:7
Thank you for loving us! Much love from the Frick Family!

Saturday, July 16, 2011

So Much To Share


I have so much to share.. I don't know where to start..lol So I decided I would time line the days and share the highlights =)
July 8- We were picked up in a limo at the Ronald House. We flew out from San Francisco. We were all so excited. Dylan didn't say anything until he got off the plane, but the flight made him have the worst headache yet. We took him to the Resort so he could rest for the evening.
July 9- LEGO LAND... He was up and ready to go earlier then we expected. We went on a morning walk and then to Ihop. It was so exciting to take him inside and watch him be excited about so much!! He wanted to go on rides, and play games. It was exciting. We met with my dear friend Cara. It was an amazing day!!
July 10- We went to the San Diego Zoo. It was incredible. So many beautiful animals.. We were amazed at everything our creator has thought of.. I type and smile to think of how he love us. The zoo was exhausting for him. After a couple of hours we went to the theater and watched Zookeeper. It was cute. He laughed a lot. It was a nice relaxing evening.
July 11- Sea world was awesome. We watched Shamu, and saw so many amazing sea creatures. We even went on fun rides that the whole family could enjoy. Moments we will cherish forever. Dylan and I went to sleep early this day. So daddy and Lyndi went and built a Sand castle on the beach =)
July 12- We went back to Lego land. We went on so many fun rides he enjoyed!!! We watched clutch powers in 4D...Super cool. He Pushed himself all day so he could do everything his heart desired. He is such a warrior.
July 13- Get up as a family to do a Sonrise walk. It was just wonderful to spend time together enjoying God's beauty all around us. We packed up and started to head to the airport. Throughout the week we checked with Dylan to see if he wanted to drive home..He didn't. The drive would be to long he said. Two hours before the flight. He bursts out in tears.."mommy I can't fly it hurts to bad." I let him know we will drive home. No big thing. It took us 12 hours with all of the stops. We would do it again in a heart beat. The time in the car was precious.
July 14- Have to go to the Doctor, pack up at the Ronald House, return our rental, pick up my dad from the airport, and go to Sacramento. We end up having an incredible dinner with our amazing family. It was such a great night. We really enjoyed being with everyone. Dylan was so happy to be with his cousins.
July 15- The kids, Josh, and my dad(Paul) go have breakfast at Josh's Aunty's house. . Then we went to lunch at the Spaghetti Factory..Dylan really wanted this for lunch.lol Then off to Redding. It was so nice to get here. We are so close to home. It's exciting!!!!
July 16- What can I say about this morning at Bethel....God is always working. His word is alive and active...It was exactly what we all needed. We got to meet up with some of our favorite peeps and got to meet a new incredible family. They were so on fire and in love with God. It was so wonderful to be part of. There doesn't seem to be words that really justify the experiences the Lord continues to bless us with. HOPE!!
So I know that is a rough breakdown of the last 10 days or so. I have wanted to share so many things on so many different occasions. My day just gets away from me, and before I know it I am going to bed. I think and pray for so many of you often. We can't wait to be home!! I also wanted to talk to the incredible people in our home town, and county. We will be home at the end of this weekend. We are excited to see so many of you. However, we do not want to overwhelm Dylan. So we hope to set up times that will work with his schedule and health. If you have cold, coughs, flus, rashes..etc within the last 72 hours we can't have you visit us. As soon as you are healthy of course you can. Dylan doesn't show a lot of expression, and is disabled at this point. He however has full mental capabilities. So please ask him questions and interact with him. He likes to feel as normal as he can. When we were on our vacation so MANY people stared at him. I understand kids...They are just so curious..The adults were the worst though. Please if you see him do not stare. It hurts him. I know we can't shelter him from everything. However, I can do my best to make this as easy as possible.
As I type this many incredible people in our community are attending, have put together, donated, shared, cooked, set up, I can't even name everything you all have done for us... THANK YOU, THANK YOU, THANK YOU! We can't express our gratitude. Your support has helped us everyday!!!! We just love you all!

Wednesday, July 6, 2011

LOVE


I know words could never truly express how much every one's love, support, and prayers have meant to my family. We feel an outpouring of love. It helps us daily!!
"The Lord is good to all: and his tender mercies are over all his works." Psalm 145: 9
I don't even know where to start....
The A's game was incredible!! I have to say we are forever A's fans. They gave my baby guy the best experience. He went on the field met some of the players, had great seats, and a care package. Detra was the incredible lady who set everything up. Thank you again Detra, you ROCK!! The players were incredible with Dylan. Josh Willingham gave D his batting gloves, and bat. Josh W. actually said he would give him his shoes but he had to play in them. Heart of Gold. Made this mommy cry. Dylan was ecstatic. I wish I could share the laughter and smiles he had. It blessed my soul.
We are counting down the days until Lego land. It's only a couple of days away!!!! Then we go Sac, BETHEL, then home=) Dylan is so ready to be home! He has a list of things he already wants to do when we get there. One of them is to be baptized at Jones beach=") What a glorious day!! His health continues to decline...but his high spirits and trust in the Lord continues to teach us so much. Dylan continues to make jokes at my expense.lol I love it. He is so funny. Laughter is so good...We laugh a lot!!!
I don't know if I will blog when I am at Lego land with the family, but I will for sure when we get back. I will keep my facebook current with pictures and what's currently going on. Thank you again for all your support! Much love and Big hugs. Enjoy your beautiful summer!!

Sunday, July 3, 2011

Feeling Broken


God is my strength and my refuge....So glad. How do you deal with this without Jesus Christ? I say this because I feel like a complete wreck today. I know what they have told us.. I just don't want to believe that...My day to day faces us with the reality of him getting worse. Then night, after night of not sleeping, or sleeping very little... It starts to wear you down. So today, and yesterday all I have wanted to do is cry. I do have my moments.. I just do NOT have those moments in front of Dylan. He has enough going on. The last thing we want to do is have him worried about how we are feeling. So now I have to cry through my words today...I just want this to be a horrible dream I wake up from. FATHER GOD I CRY TO YOU...I do not know your Will, but I lift my precious boy up to you over, and over, trusting you completely!!
"The eternal God is our refuge, and underneath are the everlasting arms." Deuteronomy 33:27