First I want to start by saying We love Jesus Christ with all of our hearts. He is the only reason I have strength to get through everyday. When you find out your child is sick it is the most helpless feeling in the world. All I can do is give it up to our Father time and time again throughout my day. I am not well written, and may ramble sometimes. However, I want to share the goodness of our Lord with EVERYONE.
For those who are just finding out about my son Dylan let me explain the last couple of weeks.. This is a small outline of what happened.
May 10 He missed a ball playing baseball. Thank goodness. It caused us to catch the Gliomas.
May 18 I take him to see Doc ( a chiropractor)
May 20 I take him to see the walk in clinic at FMC. Checked some stuff, most stuff led us to believe post concussion syndrome.
May 21 Take him to the ER, things aren't matching post concussion syndrome
My 31 Call the Dr again
June 1 Call the Dr another time
June 2 Take him to the ER again...they think I am being a crazy mom
June 3 Try a different walk in clinic, take him back to Doc, Doc gets ahold of a very awesome PA in town!! She ordered a CT asap. That afternoon we found out he had a lesion on his brain.
June 4 Starts getting really sick and back to the ER.
June6 Had an emergency MRI first thing. Then a Dr appt. at 930. The Dr. felt horrible to tell us he had a Brain Tumor. He got things moving so we could go to Stanford.
June 7 Lucile Packard Children's hospital calls. We have an appt Thursday
June 9 Met Dr.Partap, Dylan's awesome Dr.=D She said he had a Brainstem Gliomas and wanted to show the tumor board on Monday.
June 10-12 We had fun doing different actives. However, the waiting game was very hard.
June 13 Our worst moment... We are told he has a high grade brainstem gliomas and he has 6 to 12 months to live. It was like a horrible dream. However, we lift up our son and know our heavenly Father is bigger then anything in this world.
Now we are getting ready for him to start radiation next Tuesday. The time has gone by like a blink of an eye. I have to tell you what an inspiration my son is to me. Day after day of being sick he does NOT complain. He loves Jesus and shares that with us and others. Our faith and hope have been increased 10 folds. We feel blessed and honored to be used for His Glory!! Do not get me wrong I am broken... My child hurts. However, Christ continues to bless us with blessings, favor, and love. So as we go through this journey. We pray that we may continue to count it all joy through these various trails.
I also want to thank EVERYONE... Your LOVE, SUPPORT, AND PRAYERS have been such a blessing to me and to my family. It is incredible to see how Christ is working through so many people. Words truly couldn't express our gratitude! Much love to you ALL!!
The day on the top of my blog is wrong. Today is June 15, 2011
ReplyDeletePraying for healing -- God's hand of mercy and grace to be upon your family right now. I love the title of your blog - because your focus is straight up -- up towards God. He blesses us with one day at a time -living in the moment. I pray that you will be surrounded in each moment by HIS love and comfort. God is your Emmanuel (God with us)....HE is always with you -even in the darkness. His LIGHT shines even in those hard, dark places.
ReplyDeletePeace, Joy, Grace, Comfort, LOVE -- cover your family right now - we pray this in JESUS name!
<3 Blessings
WOW....I truly don't know how I would feel if this happened to me. Our children mean everything to us as parents and well, just people. My daughter, Krista, is having her first child in July and we are both just so sad for you, yet we don't have a feeling of despair. We know God is in your life and he will do whatever is in his plan for you and Dylan. I believe there is a reason for everything even if we don't understand it and can't fathom it, but I do see that God is working through you, your family and Dylan for his purpose. We love you guys and will continue our prayers....
ReplyDeleteI do not know your family, but saw a link to your blog on FB. It just so happens that today I watched this video http://vimeo.com/24821365 I know it may be the last thing you want to hear about, but you never know, God could be using this for your good:) Praying for your family:)
ReplyDeleteI dont think we have even met, maybe just saw each other passing through. I remember seeing your husband at the ball games and I asked someone who he was because I just loved how he was speaking to the kids, with such enthusiasm and kindness. You all are in our prayers.
ReplyDeletewe are praying for you and your family. God is bigger than this. And let us know your address, or a place you can receive mail, the kids at our church would love to make something for your son.
ReplyDeleteI have not words to express my heart. My family and I are fighting a spiritual battle for Dylan. I am so glad that we are on the team that concerns the power of death! Your family is an inspiration.
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ReplyDeleteI do not know you or your family. I found this post on one of my friends page on Facebook. I cannot say that I truly know what you are going thru but I know the feeling of helplessness when your child is sick. And my heart goes out to you and your family. I almost lost my 5yr old a few times due to sickness. And I have such righteous anger towards the enemy who attacks our children! Just know that I am contending for you, your child, and your family. And my testimony is that my 5yr old son has been healed. By HIS stripes Dylan is HEALED! By the power and authority that God has given me/us I speak to the brainstem gliomas and I COMMAND you to leave Dylan right now and to never come back in JESUS' NAME! And I speak life, peace, hope, strength, and protection over Dylan! And I speak to Dylan's body and I declare it to function properly and to be re-aligned to God's perfect will which is supernatural healing and divine health! And I break off any assignments from the enemy over Dylan right now by the MIGHTY POWER OF JESUS! The victory will be yours/ours!
ReplyDeleteWith much love...God bless