Hope For A Cure

Something has been on my heart to share with everyone..We needed time. Grieving isn't a process I have ever truly allowed myself to have. So I am embracing the cheese grater on the inside moments. I sometimes cry until I can't cry anymore. I know my Angel is with me. I know he is playing with Legos and Heaven and he isn't in PAIN anymore. However I have a permanent crater in my heart... I realized Dylan would want mom out sharing Jesus's Love and being true to who I am called to be. I am not here to win Kudos from Man.or to do what they think is right...I am here to Glorify the Lord and Spread his love...

About a week before we went to Lego Land, we knew we didn't have long with our little guy. Our Dr.Partap(the most incredible Peds Doctor) told my husband two days before our trip about a doctor who specifically studies DIPG tumors. Would we consider when Dylan passed if we would donate his tumor. Josh talked to me that day..He said "babe, this is the only way we may be able to help another child, another family not have to experience what we are going though."

God had already been working on me though..a couple days earlier. I was researching like a mad woman. I was going to find the answer, the cure for my son. I ran into a news clip on youtube. Seriously social networking rocks. Her name is Danah Jewett. I am honored now to be in contact with her. Looking forward to meeting her very soon. Her son Dylan Jewett battled the same monster my Dylan did just a couple of years ago. I am posting the video clip I watched. http://youtu.be/pdFfWhQ9964 You can find Danah on facebook. She also started a facebook awareness page.. Fighting to Cure DIPG.

I wasn't ready to make a decision for that before our make a wish. I knew when we got back we had our final appointment with Doctor Partap. I showed my husband the same video clip when we were in San Diego at our resort. He said he knew what he wanted to do, and so did I.

We got home from the most incredible family trip ever! Made our final stop at LPCH. We meet with all of the Doctors and told them that we would like to donate our Dylan's tumor. I am so thankful that we had an opportunity to do this. It's not a decision any parent should have to make. That's why we decided to. It's horrible to lose your child. Then to think this beast is winning...NO..we will find a cure together.

Their have been a few families who have donated their angels tumor. I Want to thank you. Praying that we have breakthroughs and and new doors open for these incredible Doctors!

Thank you for your continued prayers, love, and support. It's been such an incredible outpouring of love. Make it an incredible day.