Precious Time

Our incredible son truly teaches us so much everyday. I hope that you all remember that kids are pretty incredible and have a lot of insight. Cherish every moment. On our way to cash his piggy bank change for Legoland he asks me in a very serious voice..."mommy do all the kids at the hospital no Jesus?" I said "some do my love and some do not. He then says " we should bring our bible and teach them about Him." I LOVE HIS LOVE FOR JESUS CHRIST our LORD and SAVIOR!! We just soak up what the Lord is teaching us through our baby guy.

So we want to share what is going on with our precious angel with you all. Radiation is a no go. His tumor is just growing so fast=( Dylan wasn't wanting to do his treatments. We prayed, prayed, read our Bible, prayed, and read more.....We then spoke to his Doctor today. She completely agrees with us. She said things are going really quick , and that this is the best decision for the quality of his life...We thought last week was the hardest choice of our life. We were wrong...However, We continue to contend with our Papa God for a miracle..but we know whatever happens our God has us completely covered. WE GIVE YOU THE HIGHEST PRAISE!!

Yesterday he we had his Grandma Tammy come to visit with him. Then we went to California Great America=D We looked around and had an awesome lunch. Dylan had a blast with his Daddy on the race track. They got 1st place =) Dylan was wondering where their trophy was.lol We also are going to see the A's on Monday. Legoland very soon:) Bethel in the next couple of weeks, and then home sweet home. Dylan just want to drive over the mountain and see our gorgeous Healing Valley!

We will continue to keep everyone updated. I just want to thank everyone for all the care packages, notes of encouragement, prayers, financial support, positive thoughts, and just being here for us. We feel so HONORED and BLESSED to have each and EVERYONE of you in our life. Much love to you and yours. Big hugs.

"You will keep in perfect peace those whose mind are steadfast, because they trust in you. Trust in the Lord forever, for in the Lord. JEHOVAH is everlating strength." Isahiah 26:3-4

Thankful but Broken

This weekend was so beautiful!! Blue skies, warm weather, and bbq's happening all around =D Just perfect considering it's almot July!! We tried as much as we could to enjoy our moments. It's not always easy to keep our heads high, smile, and laugh. To be honest there are moments where it is just to hard.. Our baby on daily basis gets worse and worse. Praying and begging God for his will to have Dylan be completely restored in his name!! So unsure of all that is going on. He suffers throughout his day. As a mommy and daddy we want to fix it. We want to be able to control every aspect of this journey...We have NO control. So we give it back to God time and time again. Knowing his love, grace, and plan for Dylan is more then enough. The helplessness doesn't go away but we continue to lean into our Papa God.

He had visitors. He loved having his Grandma Sonia and Kelly spend time with him.Saturday we went and saw Cars 2. Both of the kids said it was better then Cars ;) Movie critics in the making.lol That was really the extent of all D could do. It really tuckers him out to do anything. We actually fell asleep at 715. It really wiped us both out.lol We tried swimming Sunday. He mainly floated around until he got way to cold. Since radiation has started he has been very cold. Here again it was very eye opening to us how fast he has been slipping away in front of our eyes.

We have five other families that stay in the Garden Immune Wing at Rondald House. Each one of them has already made a very specail spot in my heart. Such incredible kids!! Such incredible families!! Sharing and talking to each other has been heartbreaking but much needed. All of these kids are such strong, brave, and amazing little people =) I am truly honored to be in there presence. Each child and parent is teaching me something =') I am so thankful Lord!! Please lift them up in prayer!! So many miracles walking around us... GODBUMPS!!!

So this is our week.. Radiation Mon-Fri. We have an appt with his Doctor this morning. We were suppose to be able to lower his steriods today. I don't think that is going to happen. She thought it would improve by taking a higher dose. It hasn't worked =( He is having breathing problems sometimes in the middle of the night. Scared us to death.. So we have lots to talk about, and hopefully we can figure out some things out. We will be setting the exact dates for his Make a Wish trip today =D I believe we will be going legoland next week. Possibly the following. I will keep everyone updated. Much love to YOU and YOURS!! Make it a fabulous day!! Remeber today is a gift that is why it is called the present!!

Laughter is The Best

I have to start this by saying LAUGH alot. It really is one of the best medicines.lol I know that life can be overwhelming... But we want to Count it all joy though our various trials. Trust me it isn't easy... Watching your son fall apart daily in front of you is horrible. However, we get to spend everyday together, love on each other, and do overall pretty much what he wants. IT BLESSES US!! I really can't explain how much it means to our family. Josh has and will be able to stay down here during treatment, we can take him to eat his favorite foods, and whatever he is up to(which often we just cuddle, and chill on our bed). I can't explain how many times I have cried because of all of your support, love, and prayers. We

are blessed to be part of so many of your lives. Thank you for being part of ours.

So we finished 3 of our 3 minute radiation treatements..YAY!! Only 30 more to go... I am so proud of him. Yesterday treatment went quicker. Setting him up is getting easier. Praise you God! We have different medicines to help him with his headaches, and naseau. We figured out a routine that helps him during treatment too!! YEAH!! He was getting really bad headache while laying down during treatment. Now it is managable...Managable is better then tears...

We have the weekends off!!! No radiaton. He is digging this. So this weekend he wants to see Car 2 and go swimming. Both of which his Doctor gave a thumbs up =) Also, this weekend they are celebrating LPCH 20 years of being open!! So Sunday is a huge party for all the kids and families! I also want to ask everyone to pray for the other families. There are so many who are broken and hurting. They may know Jesus, they may not... Please lift them up as often as you can! Even though we are in a storm, we know our Papa God is our Captain!! That is for my lil guy.lol

One Day At A Time Couldn't Explain It Better

I want to say everything has been going fantastic...but he continues to get sicker and sicker...Not because of the two treatments of radiation, but because it's been like this now for almost two months!!! The treatmenst are making his headaches worse. He hasn't been able to lie flat for over a month. Well during the radiation he has to lie flat and very still!! Today after having a bad headache we went to his Doctor. She wanted him to get a Cat Scan. So we register, get a CT, grab lunch, see his Doctor again, get pain medicine, go to radiation...Ughhh Poor lil guy. He is super brave...Plus he gets awesome news today...DRUM ROLL.....He gets to go to the A's game, and before practice with the players!!! Super AWESOME!!! He actually giggled for this. It made us cry =) By the way he was getting his blood pressure done when we told him. It was high..worried them so they retake it...it was normal..He was SUPER EXCITED =D

We are all exhausted...but having alot of fun together. He wants to see Cars 2 this weekend...We are excited to do this with him. Our emotions have been crazy. I truly can't explain how we feel. I don't think words could do it justice.

Someone awesome, you know who you are;) sent me this today, she didn't know but He(Papa God) already showed me this same exact verse. Thank you for your daily reminders of your love Father!! 2 Corinthians 12:9 "My grace is sufficient for you, for My strength is made perfect in weakness." mmmm...Good word and wanted to share with all of you=)

I know so many of you have said we do not have to thank you. However, I can't help but to continue to express my gratitude!! It has been an incredible display of LOVE!! Thank you, thank you, thank you!!! xoxoxoxoxo Please enjoy your loved ones. Life is precious and time is a gift!!

I am hearing of some incredible miracles that only GOD performed. It's awesome. Need to start journaling all of His goodness=)

The Hardest Choice of our Life

I couldn't think of a better title for how today felt... We have researched many options for Dylan. We also are watching what is happening to him on a daily basis. We don't have anytime to play with. Trying to remember this has nothing to do with us and what we want...but what gives him the best QUALITY of life for the time they have given him. You see with a High Grade Brainstem gliomas there hasn't been a child who has survived. We know only God can heal our baby. The blessed children who make it to five years have a Low grade glioma....So what do we do.... We choose to go over every option with his Dr. Which by the way she has been incredible! We tell her our only concern is to give Dylan the best quality of life. She agrees. So radiation starts tomorrow at 5pm. We have prayed, tossed and turned, prayed, cried, prayed, and prayed some more...Josh and I didn't even have to look at each other during the visit. We both knew. I actually am shaking writing this....="( It just isn't something any parent should ever have to think about. I know God is covering us with an amazing amount of love. Today I visited my grandma in the hospital and she was next to room 333...and then the kids are playing outside the Ronal Mcdaonld house, and a lady had a shirt on about race car driving... and the number was 333-speed.lol That is an inside love story.lol My baby loves you Father and so do I! You comfort my family daily. Thank you Papa God for loving us beyond a measure we could ever fully understand!!! Have a blessed evening. THANK YOU THANK YOU THANK YOU for all of your continued support as we go through this part of our life. It truly blesses us!!! Much love to you and yours. Big Hugs from Dylan and Lyndi Frick's Mommy!!

Cherishing The Moments

HAPPY FATHER'S DAY to all the DADDY'S!!! May you have an incredible day!

These last few days have been very exhausting...Poor Dylan hadn't been able to use the restroom for 3 weeks. If any of you have been backed up you know this is horrible =( He had been using miralax, had 2 enemas, and tried magnesium citrate(which made him puke)...Nothing worked. So we ended up being admitted Friday. They wanted him to drink a gallon of go litely?. He couldn't... So they ended up having to put a tube through his nose to his tummy..... I can't explain the feelings that were going through me...so I could only imagine what he was feeling. I PRAY!! He is such a trooper! All night long he has the medicine pumped in him. We were praying poop prayers(which made him Smile). He is now not backed up..PRAISE GOD!!

I also want to share a verse that a dear friend sent me while in the hospital.. God uses us if we allow him. Thank you my friend for loving him and serving him the way you do...

"When I am afraid, I will trust in You." PS 56:3

We are home at the Ronald House. All completely exhausted....

We have in between times shopped, gone to the movies, and built many a lego ;) Just wanted to give everyone a short update. We really can't thank everyone enough for EVERYTHING!!!! It has been such an incredible joy for us to have so much love, and support!! BIG HUG and LOTS of LOVE to YOU!!!

Thankful

This morning as I spent quiete time with Papa God he continues to comfort, strengthen, and give me a peace I can't explain. I wanted to share some of what I read........

"Trust in the Lord with all thine heart; and lean not unto thine own understanding. In all ways acknowledge him, and he sall direct thy paths." Proverbs 3:5-6

We really have to make some hard desicions.... Praying the Lord gives us complete confidence in what we decide. I watch and pray for him all night long aching for this to be gone. I know however it is not in my time, and it is not my will but My Heavenly Father!!! His LOVE, GRACE, and MERCY are a comfort in this storm.

So today we get to Check into the ROnald McDonald house=) We are excited to stay there for Dylan. So many fun things and activites for him to do. He has a swallow test today. He is having some issues with swallowing=( Poor guy is also backed up really bad. He has been on Miralax for a couple days, has had two enemas in the last week, and still our babe can't use the restroom. So today we will be talking to Dr.Partap about that. I believe that is causing most of his tummy discomfort. Praying for this to be fixed today!!

Scott, Tammy, and Lyndi are coming to visit us today!!!!! For those of you who don't know Scott and Tammy are his grandma and grandpa Frick =) Lyndi is Dylan's little sister! She is 8, almost 9.lol Very important fact at 8 ;) We haven't seen our babe in over a week. As a parent I feel bad because I can't be in two places at one time. I know that isn't realistic. It's hard not to comfort her daily. She is having a blast with all of our family and friends!! Thank you to everyone who has played, loved, and supported our princess!!!!

Thank you for taking the time to stop by and read about what my family and I go through during this time. I feel honored to be able to serve God in anyway that I can. Not just praising him in the good times, but no matter what our circumstances!! Much Love to YOU!!

PS Thank you to everyone who has donated, prayed, sent positive thoughts, posted and reposted, and supported us!! We can't express our gratitude. It is incredible. We are truly blessed!!