Precious Time

This is short and sweet......

I really enjoy spending time with my husband, and daughter:) It doesn't matter what we do.. most of the time we have fun, and tons of laughter:) Time is a precious gift. Thankful for the daily growth:) Our chart, and calendar defintly keep this mama on track!

Lyndi is super crafty:) Doing projects with her is always fun:)

Enjoy your day! Hugs!

We Did It :)

Today was a very productive day...

I have to start by saying I do NOT sew. I did when I was a kid, and tried again when I was in my early 20's,. Either time I didn't have a passion to continue.lol However, I really wanted to make something special to send to kids battling cancer . The idea went into " The Cancer League of Superheros." Easy enough, right? Well as I found out there is alot behind sewing...This slowed the process for sure....

Before I went straight to making capes a practiced some basic things...Didn't even bother to take pictures of the first things I made.lol After successfully finishing a few projects, I took Mama Frick up on her offer to help me make the capes! She is very patient, always encourages, and is a great teacher:) Thank you again for all of your help!!We love you! After looking at different ideas we just went for it......

We will be getting the packages finished up, and mail them out by the end of this week:) Thank you for all for your continued support!!!

Relay for Life 2013:)

So excited for Relay for Life this year:) As many of you know I was planning on doing this last year....I didn't. I went, and left. I was still in a healing process and I wasn't ready.... This year is different!!!!

The theme for Relay for life is....drum roll please..... SUPERHEROS:) I love it! Tomorrow my wonderful mother-in-law, and I will be finishing up two capes, for two precious children. Earlier this year I started a facebook page called "The Cancer League of Superheros". We want to be able to send care packages, and custom designed superhero capes to each child that is sent to us: via facebook, email, or twitter. We have had many donations, and I want to thank you all for the support:) We will be sending off the first packages in the next week:)

So that brings me back to this amazing organzation, Relay For Life. The walk will be this year on July 20th, and it will start at 9am. It goes for a full 24 hours! Josh, and I are going to walk for the Entire time, with the exception of using the bathroom.lol Team Dylan is going to make an impact on cancer!!! Please join us spread Hope , and make some memories that we can cherish forever!!! You won't want to miss it;) If you are interested please let me know. I will get you the information that you will need as soon as possible .

We really appreciate all of your support, and love!

Blessings, and lots of LOVE, Jenn

Just wanted to share the keychains that we got each other at Christmas:) Dylan loved superheros! When he was little he had multiple pairs of superman jammies, cape and all:) Such an amazing smile....His eyes just so full of love and life:) Blessed to be his mommy! Such sweet memories:)

5 For 55

So on Janurary 5th I committed to 5 habits I would like to incorporate in my life....

1. Spend time in Papa's Presence

2. Read 30 minutes daily

3. Continue making smart food choices

4. Journal

5. Spend time inside V6

I made a daily checklist at home, and am looking forward to the daily growth...Why 55 days? It's said a habit takes 21 days to be created:) I hope you are having a great New Year so far!

Hope For A Cure

Something has been on my heart to share with everyone..We needed time. Grieving isn't a process I have ever truly allowed myself to have. So I am embracing the cheese grater on the inside moments. I sometimes cry until I can't cry anymore. I know my Angel is with me. I know he is playing with Legos and Heaven and he isn't in PAIN anymore. However I have a permanent crater in my heart... I realized Dylan would want mom out sharing Jesus's Love and being true to who I am called to be. I am not here to win Kudos from Man.or to do what they think is right...I am here to Glorify the Lord and Spread his love...

About a week before we went to Lego Land, we knew we didn't have long with our little guy. Our Dr.Partap(the most incredible Peds Doctor) told my husband two days before our trip about a doctor who specifically studies DIPG tumors. Would we consider when Dylan passed if we would donate his tumor. Josh talked to me that day..He said "babe, this is the only way we may be able to help another child, another family not have to experience what we are going though."

God had already been working on me though..a couple days earlier. I was researching like a mad woman. I was going to find the answer, the cure for my son. I ran into a news clip on youtube. Seriously social networking rocks. Her name is Danah Jewett. I am honored now to be in contact with her. Looking forward to meeting her very soon. Her son Dylan Jewett battled the same monster my Dylan did just a couple of years ago. I am posting the video clip I watched. http://youtu.be/pdFfWhQ9964 You can find Danah on facebook. She also started a facebook awareness page.. Fighting to Cure DIPG.

I wasn't ready to make a decision for that before our make a wish. I knew when we got back we had our final appointment with Doctor Partap. I showed my husband the same video clip when we were in San Diego at our resort. He said he knew what he wanted to do, and so did I.

We got home from the most incredible family trip ever! Made our final stop at LPCH. We meet with all of the Doctors and told them that we would like to donate our Dylan's tumor. I am so thankful that we had an opportunity to do this. It's not a decision any parent should have to make. That's why we decided to. It's horrible to lose your child. Then to think this beast is winning...NO..we will find a cure together.

Their have been a few families who have donated their angels tumor. I Want to thank you. Praying that we have breakthroughs and and new doors open for these incredible Doctors!

Thank you for your continued prayers, love, and support. It's been such an incredible outpouring of love. Make it an incredible day.

Broken/Spreading Awareness

Today marks 20 days since my sweet boy went to Heaven...I wish I could write you some uplifting message...I am completely broken. I have good moments Praise GOd! It's such a roller coaster.. Plus I think whoever is running this roller coaster took a break. lol We have moved..Good thing for the family. Everything I know is the four of us...Now there is three of us.. Man I can't even explain all that has been going on. I will start writing regularly next week. My husband should be heading back to work in the next week or two..  UGGHH.. I know Dylan is better...I am so thankful for that. I mean the last couple of days of DJ's life I was praying for Papa to take him home quickly... He did...our answered prayers aren't always what our will wants... I trust his Gods  plan completely but I don't have to like them every moment.  I have't been blogging because I know my mind is a whirlwind...  I just know it's bouncing around. Just like this;) So when I am able, I will share the last month with you...

This month is CHILDHOOD CANCER AWARENESS month...Please join us. If we can all come together we can make a difference. So please join us...Help these beautiful babies!! TURN FACEBOOK YELLOW THIS MONTH =) Thank you!!

Diffuse Intrinsic Pontine Glioma (DIPG)

A Diffuse Intrinsic Pontine Glioma (DIPG) is a tumor located in the pons (middle) of the brain stem. The brain stem is the bottom most portion of the brain, connecting the cerebrum with the spinal cord. The majority of brain stem tumors occur in the pons (middle brain stem) and are diffusely infiltrating, (they grow amidst the nerves), and therefore are not able to be surgically removed. Glioma is a general name for any tumor that arises from the supportive tissue called glia, which help keep the neurons, ("thinking cells") in place and functioning well. The brain stem contains all of the "wires" converging from the brain to the spinal cord as well as important structures involved in eye movements, face and throat muscle control and sensation.
Source: The American Brain Tumor Association

The median overall survival of children diagnosed with DIPG is approximately 9 months. The 1 and 2 year survival rates are approximately 30% and less than 10%, respectively. These statistics make it one of the most devastating pediatric malignancies.
Source: Treatment of newly diagnosed diffuse brain stem gliomas in children - David N. Korones.

The standard treatment for DIPG is 6 weeks of radiation which often dramatically improves symptoms. Unfortunately, problems usually recur after 6 to 9 months, and progress rapidly.
Source: St Jude Childrens Research Hospital

In their quest for a cure, DIPG children must move from one experimental protocol to another enduring treatments with many side-effects which would be unacceptable with any other diagnosis. The cruelty of this disease cannot be denied. Sparing their cognitive abilities, DIPG slowly robs children of their motor functions resulting in partial paralysis, loss of voice and sight and finally ending with an inability to eat and breathe. It is both heart wrenching and painful as they are fully aware of their decline often until their last day. The cure starts now...
Source: The Cure Starts Now

We currently DO NOT know what causes brain tumors. The major causes seem to be chromosomal and genetic abnormalities. Research so far has statistically proved very few instances of possible environmental causes for childhood cancer. The Children's Oncology Group (COG) continues to conduct epidemiology, cytogenetic, and microbiology studies in their quest for answers.

Funding for pediatric brain tumor research is critical since treatments discovered for adult brain tumors may not be appropriate for children. Pediatric cancer research has been important in understanding the basic biology of cancer, treating adults with cancer and providing principles of therapy and advances for other diseases of children and adults. For example, chemotherapy was first shown to be effective in curing children with cancer.

In recent years, the amount of funding for childhood cancer clinical research from the federal government has been declining. (we can change this!!!) We can make a difference. It breaks my heart that funding is very minimal for a monster that gives these kids a death sentence.

 We as TEAM DYLAN FRICK will spread awareness and raise money for research. I can't express how thankful we are for each and everyone of you. Thank you again for you continued prayer, support, love, and financial support. It has blessed us with time that was priceless =) Thank you for being part of our journey.

Dylan's Celebration Info

I haven't been able to write...I can't even explain how broken I feel. I know time will heal..time is just going really slow. I just wanted to share Dylan's Celebration info. Thank you for following his journey. His legacy will live on. We have many things in the work. We are excited to share as things start happening. We love you all and can't thank everyone enough for all of your support and Love. It has made this storm in our lives much more bearable.

Greenview, Ca-Last Saturday, Aug. 13, 2011, Dylan James Frick succumbed to the Brainstem Glioma he was diagnosed with on June 6 of this year. His loving parents were by his side.

Josh and Jenn Frick welcomed their son Dylan into the world on Nov. 11, 2000 in Medford, Ore. As a toddler, Dylan enjoyed playing with Bob the Builder toys, watching “Shrek” and putting his favorite Thomas the Trains on the track watching to see who went the fastest. A few short years later, Dylan graduated to PlayStation games and building LEGOS. He started with fairly simple LEGO sets, like cars and small space ships, then progressed to a large castle with working parts and an old sailing vessel.
Dylan’s faith in the Lord grew strong in the last few years. He enjoyed attending Awana and looked forward to church on Sundays. Soon after Dylan’s brain tumor (DIPG) was diagnosed, Dylan and his family went to stay at the Ronald McDonald house in Palo Alto. Dylan knew he had a life-threatening condition, but instead of feeling sorry for himself, his kind heart and strong faith led him in another direction. One day, Dylan looked up at his dad and asked, “Do you think the other children here know Jesus?” Josh replied, “I don’t know, Buddy. Why do you want to know?” Dylan answered earnestly, “Because I want to pray with them.” And they did pray with several families that day, all because a selfless 10-year-old boy wanted to bring peace to other sick children.
During his stay at the Ronald McDonald House, Dylan compiled a “Bucket List” of things he would really like to do. Among them was going to an Oakland A’s game, getting baptized at Jones Beach, and experiencing LEGOLAND. Not only did he cross everything off of his list, he also received a beautiful gift from his favorite singer, Kim Walker. She came to visit Dylan and sing for his family. Dylan never lost his wonderful sense of humor, either. Jenn was outside one night trying to collect her thoughts when she was charged by a territorial raccoon. She quickly aimed a rock and hit him in the head. Instead of frightening him away, he chased her back to the building! A few weeks later, after the family returned from their trip to LEGOLAND, Dylan was ready. As they got out of the car, Dylan started smiling and called out, “Raccoon … my mom is here,” then he turned to Jenn and asked, “Are you scared, mom?”
A few weeks ago, Dylan hosted a community party at Greenhorn Park to thank all of the wonderful people who worked so tirelessly, donated generously and prayed for his recovery. He had a great time that day and was able to make some wonderful memories.
Dylan is survived by his parents Josh and Jenn Frick; his sister Lyndi; his paternal grandparents Scott and Tammy Frick; his maternal grandparents, Rosalinda Sendejo, Sonia Cantrell, Paul Yingst and Dwight Fugler; and his aunts and uncles, Luis and Jessie Valladares, Will Fugler, Julie, Jessica, Selena and Bianca Sendejo.
In lieu of flowers, please make monetary donations for LEGO sets or donate actual LEGO sets to Mountain Heating & Air, 211 E. Oberlin Rd., Yreka, CA 96097, or to the Frick Family, P.O. Box 121, Greenview, CA 96037. Each year, the Frick family will be traveling to the Lucille Packard Hospital on Dylan’s birthday to handout the donated LEGO sets and pray with the families living in the LPH house awaiting their treatment.
There will be a celebration of life party in Dylan’s honor at Lower Greenhorn Park this Saturday, Aug. 20, 2011 at 1 p.m. Per the family’s request, please wear bright-colored clothing, bring a folding chair and a main or side dish to share, and come celebrate what a remarkable young man he was.

This was Dylan's Favorite bible verse:
“If we live in the Spirit, let us also walk in the Spirit.” – Galatians 5:25
Girdner Funeral Chapel is handling the services for Dylan.

Thank you again The Frick Family