First I want to start by saying We love Jesus Christ with all of our hearts. He is the only reason I have strength to get through everyday. When you find out your child is sick it is the most helpless feeling in the world. All I can do is give it up to our Father time and time again throughout my day. I am not well written, and may ramble sometimes. However, I want to share the goodness of our Lord with EVERYONE.
For those who are just finding out about my son Dylan let me explain the last couple of weeks.. This is a small outline of what happened.
May 10 He missed a ball playing baseball. Thank goodness. It caused us to catch the Gliomas.
May 18 I take him to see Doc ( a chiropractor)
May 20 I take him to see the walk in clinic at FMC. Checked some stuff, most stuff led us to believe post concussion syndrome.
May 21 Take him to the ER, things aren't matching post concussion syndrome
My 31 Call the Dr again
June 1 Call the Dr another time
June 2 Take him to the ER again...they think I am being a crazy mom
June 3 Try a different walk in clinic, take him back to Doc, Doc gets ahold of a very awesome PA in town!! She ordered a CT asap. That afternoon we found out he had a lesion on his brain.
June 4 Starts getting really sick and back to the ER.
June6 Had an emergency MRI first thing. Then a Dr appt. at 930. The Dr. felt horrible to tell us he had a Brain Tumor. He got things moving so we could go to Stanford.
June 7 Lucile Packard Children's hospital calls. We have an appt Thursday
June 9 Met Dr.Partap, Dylan's awesome Dr.=D She said he had a Brainstem Gliomas and wanted to show the tumor board on Monday.
June 10-12 We had fun doing different actives. However, the waiting game was very hard.
June 13 Our worst moment... We are told he has a high grade brainstem gliomas and he has 6 to 12 months to live. It was like a horrible dream. However, we lift up our son and know our heavenly Father is bigger then anything in this world.
Now we are getting ready for him to start radiation next Tuesday. The time has gone by like a blink of an eye. I have to tell you what an inspiration my son is to me. Day after day of being sick he does NOT complain. He loves Jesus and shares that with us and others. Our faith and hope have been increased 10 folds. We feel blessed and honored to be used for His Glory!! Do not get me wrong I am broken... My child hurts. However, Christ continues to bless us with blessings, favor, and love. So as we go through this journey. We pray that we may continue to count it all joy through these various trails.
I also want to thank EVERYONE... Your LOVE, SUPPORT, AND PRAYERS have been such a blessing to me and to my family. It is incredible to see how Christ is working through so many people. Words truly couldn't express our gratitude! Much love to you ALL!!
